AN AFFILIATE OF THE LIFE SPAN INSTITUTE & THE DEPT. OF SPECIAL EDUCATION

Beach Center on Disability

Publication

Family perspectives on inclusive lifestyle issues for people with problem behavior.*disclaimer

Data were collected through in-depth telephone interviews with 17 families of children, youth, and adults with challenging behavior. This exploratory study focused on inclusion, the lifestyle that goes along with it, and the importance of these issues to families. The study's results were organized into categories that emerged from the qualitative data analysis. The prevalent themes are family life, friendship issues, school issues, community inclusion, and supported living or supported employment issues. The study found that supports that are in place for children and adults with disabilities and/or challenging behavior and their families to encourage inclusion are extremely insufficient and inadequate. None of the people with problem behavior in this study live an inclusive lifestyle. The authors recommend expanding family support and setting priorities for future topics for research and training that can help to make inclusion a reality.

Authors: Turnbull, A.P.