It Takes a Village: Logan's Story

From a doctor's office in Topeka, KS came a phone call from Monica, the young mother of then 18-month-old Logan to the TARC Infant and Toddler program.  Logan's pediatric neurologist had concerns about his development and wanted to support the family in the best way he knew how, by referring him to the very capable infant and toddler program in his area.  Logan's doctor suspected a possible diagnosis of Joubert Syndrome. Joubert Syndrome is a very rare genetic disorder that can affect muscle control, breathing, and tongue and eye movements. It can only be fully diagnosed by a brain scan that reveals a malformation resembling the shape of a molar.