Congress has passed federal laws authorizing care coordination. Congress rarely stops enacting laws on a given topic; lawmakers learn about new problems and propose new laws to solve them. One proposed law, the Medical Homes Act, provides for care coordination for children who have medical homes.
State legislatures, too, enact their own laws that complement the federal laws and provide structure within a state. State laws address care coordination.
Advocating for care coordination involves a partnership between the family and the professional. Often this partnership is more about creating or improving care coordination in general than it is about a particular child. When families and professionals work together, they often rely on policies developed by professional or parent associations.
Often, parent associations contribute significantly to the professional associations’ policy statements. The American Academy of Pediatrics has a model care coordination policy.
You may listen to a conversation between Molly Cole, a parent advocate, and Richard Antonelli, a physician, about partnerships for policy reform and the child’s benefit.
Hear audio interview with Molly and Rich (PC)
Hear audio interview with Molly and Rich (MAC)
Most Comprehensive Resource on Care Coordination
Coordinated Care Record was developed by the Division of Specialized Care for Children at the University of Illinois at Chicago. It incorporates both a care notebook and resource links about funding, early intervention, education, and medical rights.